Whether you're caring for a parent, grandparent, partner, or other family member who is living with younger onset dementia or Posterior Cortical Atrophy dementia, you belong here.

Hear Stories from carers like you, understand the Science behind rare and young onset dementias, and find Support through community.

Seeing Dementia Differently

A Community for Young Dementia Carers

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Our Purpose

To create a community for young people who are looking after a loved one with dementia, that offers compassionate guidance, clear information and real connection, built from lived experience.

Ways to Connect

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You don’t have to do this alone. We have a variety of online groups for caregivers. You can connect with other young dementia carers and rare dementia carers. Share advice, talk about experiences, and feel understood. Our groups include:

Caring for a Parent, Caring for a Grandparent, Young Carer (Not Dementia Related), PCA Caregivers, Neurodivergent Caregivers, & Dementia Professionals.

Community Groups

Find your group
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Talking about dementia isn't always easy. Maybe you're not sure how to tell your friends, teachers or family, or you're still working out how you feel.

You don't need to have it all figured out. Our 1:1 support is tailored to you and your situation. We can talk by phone, video call, or in person (depending on location). If you need a non-judgemental, confidential place to talk, this is support designed for you.

1:1 Support

Learn more
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Our monthly Carers Conversation series shares genuine, personal stories from young people who are caring for a loved one with young onset or rare dementia. We hope you find comfort in shared experience and that this series helps you feel understood.

Our amazing guests have shared about FTD, PCA, PPA, Young-Onset Alzheimer’s, and Vascular Dementia.

Carers Conversations

Explore Conversations
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We know that you need a break sometimes. Our community in-person events are tailored to people affected by younger onset dementia, and there is never any expectation to talk about it.

We have events that are just for young adult carers because having a space of your own is important. And we have events where everyone is welcome, including those living with dementia.

Community Events

See our upcoming events
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We have a library of dementia resources. Ranging from safety tools like the Herbert Protocol, and home fire safety checks, to Posterior Cortical Atrophy (PCA) dementia specific resources to help you understand the condition and support your loved one.

We are always building more resources and looking for good ones to share. Take a look at each of the headings at the top of this page.

Resources

View PCA resources
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Stories, Science, Support in a bitesize format. We post regularly to keep you informed and connected.

Dementia history, educational material, lived experience stories, practical tips and advice for carers and the updates in the world of research. You can connect with us on TikTok, Instagram, YouTube, and Facebook. Follow, share and learn more about dementia.

Social Media

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Who can be part of the SDD Community?

Illustration of a father and daughter. Words read, Seeing dementia differently, a community for young dementia carers. The man has brown hair and a blue shirt and the young girl has blonde curly hair and a purple shirt.

  • Young Dementia Caregivers who are supporting a family member with young-onset dementia

  • Young Dementia Caregivers who are supporting someone with a rare form of dementia e.g. FTD or PCA Dementia

  • Young people who might not identify as caregivers but are helping look after someone with dementia

  • Posterior Cortical Atrophy (PCA) Caregivers

  • Health & Social Care Professionals with an interest in young carer experiences and rare dementias

  • Anyone looking to learn more about dementia caregiving, science, and experiences