Resources for PCA Dementia
If you are caring for someone with Posterior Cortical Atrophy, or living with a diagnosis yourself, you can find lots of useful resources here
We are still building this page - please bear with us
Do I see what you see? - Created out of Mind
A video that offers an insight into what life looks like through the eyes of someone living with PCA
The Stages of PCA - Rare Dementia Support
Contains information that may be upsetting
This document is a framework for how PCA might progress. It is very unique to the individual so your loved one might not experience all of the symptoms listed and possibly not in this order. This is intended to give you an outline based off of other peoples lived experiences. Please understand that there is information in here about later stages and end of life so only read if you are ready to do so - if you would like support going through this document, I would be happy to help, head to the contact form on the website and get in touch.
Click here for the document → The Stages of PCA
Alzheimer’s Research UK - PCA Booklet
A booklet that offers info on PCA dementia and signposting to helpful organisations